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    The Meaning of Living with Uncertainty for People with Motor Neurone Disease

    Harris, D, Jack, K and Wibberley, Christopher (2018) The Meaning of Living with Uncertainty for People with Motor Neurone Disease. Journal of Clinical Nursing, 27 (9-10). pp. 2062-2071. ISSN 0962-1067

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    Abstract

    Aim. The aim of this study was to explore the meaning of living with uncertainty for people diagnosed with motor neurone disease (MND). Background. MND is a progressive neurodegenerative condition resulting in multiple needs, arising from the complex nature of the disease trajectory. People with MND are often required to make decisions for symptom management and end-of-life care. Research into the lived experience of MND has previously highlighted: the shock of receiving such a diagnosis and prognosis; subsequent concerns relating to the future and loss; and the existential suffering for a person with MND. The lived experiences of MND accentuate the devastating nature of the disease and this can impact upon how people respond to care.

    Item Type: Article
    Peer-reviewed: Yes
    Date Deposited: 18 Apr 2018 10:42
    Publisher: Wiley
    Additional Information: This is an Author Accepted Manuscript of a paper accepted for publication in Journal of Clinical Nursing, published by and copyright Wiley.
    Divisions: Faculties > Health and Education
    Subject terms: Science & Technology, Life Sciences & Biomedicine, Nursing, body experiences, concerns, motor neurone disease, palliative care, uncertainty, AMYOTROPHIC-LATERAL-SCLEROSIS, CARE, EXPERIENCES, ILLNESS, LIFE, CANCER, ISSUES, DEATH, body experiences, concerns, motor neurone disease, palliative care, uncertainty, 1110 Nursing, 1701 Psychology, Nursing
    URI: https://e-space.mmu.ac.uk/id/eprint/620324
    DOI: https://doi.org/10.1111/jocn.14350
    ISSN 0962-1067

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