e-space
Manchester Metropolitan University's Research Repository

The Meaning of Living with Uncertainty for People with Motor Neurone Disease

Harris, D and Jack, K and Wibberley, Christopher (2018) The Meaning of Living with Uncertainty for People with Motor Neurone Disease. Journal of Clinical Nursing, 27 (9-10). pp. 2062-2071. ISSN 0962-1067

[img]
Preview

Download (819kB) | Preview

Abstract

Aim. The aim of this study was to explore the meaning of living with uncertainty for people diagnosed with motor neurone disease (MND). Background. MND is a progressive neurodegenerative condition resulting in multiple needs, arising from the complex nature of the disease trajectory. People with MND are often required to make decisions for symptom management and end-of-life care. Research into the lived experience of MND has previously highlighted: the shock of receiving such a diagnosis and prognosis; subsequent concerns relating to the future and loss; and the existential suffering for a person with MND. The lived experiences of MND accentuate the devastating nature of the disease and this can impact upon how people respond to care.

Impact and Reach

Statistics

Downloads
Activity Overview
2Downloads
5Hits

Additional statistics for this dataset are available via IRStats2.

Altmetric

Actions (login required)

Edit Item Edit Item