What is needed to obtain informed consent and monitor capacity for a successful study involving People with Mild Dementia? Our experience in a multi-centre study

Lim, Jennifer, Almeida, Rosa, Holthoff-Detto, Vjera, Ludden, Geke, Niedderer, Kristina ORCID: https://orcid.org/0000-0002-8188-6338 and MinD consortium (2019) What is needed to obtain informed consent and monitor capacity for a successful study involving People with Mild Dementia? Our experience in a multi-centre study. In: Proceedings: Designing with and for people with Dementia: Wellbeing, Empowerment and Happiness. International MinD Conference 2019, 19 September 2019 - 20 September 2019, Dresden, Germany.

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Abstract

Strategies on informed consent process and capacity monitoring for mild dementia research are at developing state. We reflected on our experience in the MinD project, and found that the successful collection of informed consent and full participation of PwD required the involvement of familiar healthcare professionals/care workers/staff at the recruitment and data collection stages and this needs to occur in an active support environment. Time is another important factor affecting the success of the study.