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‘'Ethno…graphy?!? I can't even say it”: Co‐designing training for ethnographic research for people with learning disabilities and carers

Mikulak, Magdalena and Ryan, Sara and Bebbington, Pam and Bennett, Samantha and Carter, Jenny and Davidson, Lisa and Liddell, Kathy and Vaid, Angeli and Albury, Charlotte (2021) ‘'Ethno…graphy?!? I can't even say it”: Co‐designing training for ethnographic research for people with learning disabilities and carers. British Journal of Learning Disabilities. ISSN 1354-4187

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Abstract

Background There is a strong ethical case and an urgent need for more participatory research practices in disability research but a lack of resources to support this. It is important to involve people with learning disabilities and carers at all stages, including when designing training for co-research. Methods We co-developed training materials to support people with learning disabilities and carers to work as ethnographic co-researchers and for academic researchers to facilitate co-research. We focused on what people with learning disabilities and carers thought was important to learn. Findings Whilst not all types of research methods are easy to democratise, ethnographic observation is a research method that lends itself well to participatory co-research. Conclusions For people to be able to meaningfully participate, research processes need to become more accessible and transparent. Training that considers the needs and priorities of people with learning disabilities and carers and addresses the confidence gap is key for meaningful co-research.

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