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The health and social care needs of family carers supporting adults with autistic spectrum disorders

Burton, Mark and Hare, Dougal J. and Pratt, Catherine and Bromley, Jo and Emerson, Eric (2004) The health and social care needs of family carers supporting adults with autistic spectrum disorders. Autism, 8 (4). pp. 425-444. ISSN 1362-3613

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Abstract

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and underreported role of families in supporting adults with ASDs.

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