The health and social care needs of family carers supporting adults with autistic spectrum disorders

Burton, Mark, Hare, Dougal J., Pratt, Catherine, Bromley, Jo and Emerson, Eric (2004) The health and social care needs of family carers supporting adults with autistic spectrum disorders. Autism, 8 (4). pp. 425-444. ISSN 1362-3613

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Abstract

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between parental emotional distress and unmet need was found. Parents also reported a need for more autism-specific intervention and support for adults with ASDs. The study illustrates the continuing and underreported role of families in supporting adults with ASDs.

Item Type:	Article
Peer-reviewed:	No
Date Deposited:	10 Sep 2009 15:11
Publisher:	Sage
Additional Information:	Full-text of this article is not available in this e-prints service. This article was originally published [following peer-review] in Autism, published by and copyright Sage.
Divisions:
URI:	https://e-space.mmu.ac.uk/id/eprint/80677
DOI:	https://doi.org/10.1177/1362361304047225
ISSN	1362-3613

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