Making Endometriosis Visible

Hearn, Jasmine ORCID: https://orcid.org/0000-0001-5988-5278 and Whadcock, Ian (2025) Making Endometriosis Visible. [Dataset] (Unpublished)

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Abstract

Endometriosis is a chronic condition where tissue similar to the uterine lining grows outside the uterus, affecting 1 in 10 women in the UK. Symptoms include painful periods, chronic pelvic pain, and difficulty getting pregnant. Diagnosis often takes 8 years due to communication issues and pain normalisation. This project aims to improve communication about endometriosis pain through a novel blend of health psychology, linguistics, and art and design. By engaging the public with endometriosis in a series of workshops to create visual artefacts of pain, we developed a toolkit to support effective communication and reduce diagnosis delays. The images within this dataset underpin that toolkit, and constitute visual representations of our participants’ endometriosis.