O'Malley, Mary, Parkes, Jacqueline, Stamou, Vasileios, La Fontaine, Jenny, Oyebode, Jan and Carter, Janet (2020) International consensus on quality indicators for comprehensive assessment of dementia in young adults using a modified e‐Delphi approach. International Journal of Geriatric Psychiatry, 35 (11). pp. 1309-1321. ISSN 0885-6230
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Abstract
Objective To develop guidance for clinicians about essential elements that can support clinical decision‐making in the diagnostic workup of young onset dementia. Methods/Design Three iterations of a modified e‐Delphi consensus survey comprising 23 international expert clinicians specialising in diagnosis of young onset dementia. Outcome measures A priori consensus was pre‐defined as 80% of experts ranking statements in the upper threshold on a seven‐point Likert scale that ranged from “not important at all” to “absolutely essential” to diagnosis. Results 80% consensus was reached on 48 statements that were rated as ‘absolutely essential' or “very important” to a comprehensive assessment of dementia in a younger adult. In order to inform a subsequent audit of clinical records in which compliance with these statements was assessed, the statements were divided into a Minimum Standard, (consisting of the 15 statements voted by all experts as being “absolutely essential” or “very important”) and a Gold Standard where 48 statements were voted by 80% of the experts as being ‘absolutely essential' or ‘very important'. The expert's response rate across the three rounds was 91.3%. Conclusion A minimum standard and gold standard have been created for the diagnostic workup of young onset dementia. The standards provide a clinically useful tool for decision‐making particularly for generalists and those with less experience in the field. The standards will be used to inform a UK case note audit of recently diagnosed patients with YOD.
Impact and Reach
Statistics
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