The experiences of orthodox Jewish parents of children with Autism Spectrum Disorder and Attention Deficit/Hyperactivity Disorder

Bass, Rachel (2012) The experiences of orthodox Jewish parents of children with Autism Spectrum Disorder and Attention Deficit/Hyperactivity Disorder. University of Salford.

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Abstract

In this study, the experiences of 6 orthodox-Jewish parents of children with ASD/ADHD in Salford, Greater Manchester, UK, were explored using semi-structured interviews. Results: Results were analysed using Grounded Theory. Parents described a three-stage journey to “planet ASD/ADHD”. The initial stage of denial, confusion and battling with the child’s difficulties was resolved by reaching the next stage, “awareness and acceptance of the child’s ASD/ADHD: a positive turning point”. The final stage, “Life on planet ASD/ADHD” was described in both positive and negative terms. Parents reflected on their family’s positive growth and on their appreciation of ASD/ADHD strengths. Negative experiences were community stigma, financial restrictions, discouragement, burnout and alienation, and perceived lack of support for ASD/ADHD in community schools. Finally, further research suggestions, limitations and reflexivity are discussed.