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A narrative inquiry into the role of advocacy and activism amongst mothers with a child diagnosed with an Autism Spectrum Disorder

Moroney, Ella (2014) A narrative inquiry into the role of advocacy and activism amongst mothers with a child diagnosed with an Autism Spectrum Disorder. Manchester Metropolitan University. (Unpublished)

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Abstract

This is a qualitative study into the role of advocacy and activism amongst mothers who have a child diagnosed with an Autism Spectrum Disorder (ASD). Previous research specifically examining this subject recognises it as a development to combat societal isolation (Ryan and Runswick-Cole, 2009; Woodgate et al., 2008). This study seeks to examine the concept further. Five mothers participated in a Free Association Narrative Interview (FANI) to gain an understanding of experiences related to advocacy and activism. The participants were obtained through a snowball sample, whereby personal links were utilised. It demonstrates the importance of advocacy and activism to the participants and their children. A thematic analysis identified three key emerging themes. Namely, developing supportive relationships, negotiating educational approaches and preparing for their children’s future.

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