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    ‘I am free in my wheelchair but pain does have a say in it though’: The meaning and experience of quality of life when living with paraplegia and chronic pain

    Hughes, Melanie, Burton, Amy E and Dempsey, Robert C ORCID logoORCID: https://orcid.org/0000-0002-6477-2363 (2017) ‘I am free in my wheelchair but pain does have a say in it though’: The meaning and experience of quality of life when living with paraplegia and chronic pain. Journal of Health Psychology, 24 (10). pp. 1356-1367. ISSN 1359-1053

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    Abstract

    This study investigated how wheelchair-using individuals with paraplegia and chronic pain make sense of the factors associated with quality of life based on interviews using photo-elicitation and interpretative phenomenological analysis. Three superordinate themes emerged in the analysis: experiencing quality of life through the perception of self and identity, interpersonal relationships as facilitators and barriers to quality of life and life in a wheelchair: pain experience and management. Quality of life for those living with paraplegia and chronic pain is experienced as a complex interaction across several life domains. The use of photographs may improve the communication of pain-related experiences and understanding by healthcare staff.

    Item Type: Article
    Peer-reviewed: Yes
    Date Deposited: 22 Nov 2019 14:42
    Publisher: SAGE Publications
    Additional Information: This is an Author Accepted Manuscript of a paper accepted for publication in Journal of Health Psychology, published by and copyright Sage.
    Divisions: Faculties > Health and Education
    Research Centres > Health, Psychology and Communities
    Subject terms: disability, interpretative phenomenological analysis, pain, qualitative methods, quality of life, 1701 Psychology, 1702 Cognitive Sciences, 1302 Curriculum and Pedagogy, Public Health
    URI: https://e-space.mmu.ac.uk/id/eprint/624399
    DOI: https://doi.org/10.1177/1359105317750254
    ISSN 1359-1053
    e-ISSN 1461-7277

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